Seth is home.....He actually gets to have a small break and be home for a couple of days. His counts were coming up and he was really "healthy" so they let him go home for a couple of days before the next round of Super Chemo. What a great surprise this is!
This next round will begin Tuesday (unless it changed and I don't know :) and will mimic the first in intensity. When he returns to the hospital they will check the blood and bone marrow to see if remission has been achieved. Keep the prayers coming! I know they are helping!
Sunday, January 24, 2010
Wednesday, January 13, 2010
Count Recovery
Seth is in count recovery. He went to "zero" rather quickly due to massive doses he is receiving. He is also receiving back pokes; which are direct shots of chemo into his spine. He is supposed to be receiving one more tomorrow.
We are waiting for an update on the Bone marrow Transplant and we won't know the actual success of the chemo until his counts come back up. So...we wait! Of course he is feeling a little pooped and low on energy, but he is a happy and darling little guy and we all love being around him!
Also, we are supporting the Riders Against Cancer fundraising dinner on Monday January 18th at the Noah's event center in Lindon Utah from 6-9pm. This is an organization that helped raise money for Seth last summer/fall. They are raising the funds to become legally recognized as a non-profit organization and to be able to continue support of Seth and his family. If you are interested in donating to them and/or attending the dinner please email darin@rimdoor.com , nick.bollschweiler@hotmail.com or brenttracy1@yahoo.com for tickets and further information.
We appreciate the support and hope you will continue to pray for our little SethMan!
We are waiting for an update on the Bone marrow Transplant and we won't know the actual success of the chemo until his counts come back up. So...we wait! Of course he is feeling a little pooped and low on energy, but he is a happy and darling little guy and we all love being around him!
Also, we are supporting the Riders Against Cancer fundraising dinner on Monday January 18th at the Noah's event center in Lindon Utah from 6-9pm. This is an organization that helped raise money for Seth last summer/fall. They are raising the funds to become legally recognized as a non-profit organization and to be able to continue support of Seth and his family. If you are interested in donating to them and/or attending the dinner please email darin@rimdoor.com , nick.bollschweiler@hotmail.com or brenttracy1@yahoo.com for tickets and further information.
We appreciate the support and hope you will continue to pray for our little SethMan!
Tuesday, January 5, 2010
Bone Marrow Transplant Meeting 1/5/2010
Today there was a meeting with the Bone Marrow Transplant team....Here is the information from that. (Beware...I think I have more questions now than before)
Starting today we have begun the 8-12 week "get" ready process for the actual transplant. During this time they concentrate on finding a Bone Marrow match, getting insurance approval etc. This process will be involved and tedious, however they already have over 100 good matches for bone marrow (based on pre-typing) and a handful of good cord blood matches. They will narrow down the matches based a certain criteria to about 5 and then re-type and test further from there.
MEANWHILE.....
Sethman needs to get in remission again. They will continue to do Chemo injections 2x's per week in the spine and once remission is achieved, they will get his counts up then start prep. therapy for transplant. Which is basically as follows: Kill all bone marrow, through major Chemotherapy, plan on that taking 1.5- 2 weeks, then transplant. This is actually done in his room and then we wait for counts to come back. This typically takes around 20 days. for the next 6-8 weeks they watch for Graft vs. Host disease. This is where it gets tricky for me. They actually want to see this as it means the body didn't automatically assimilate the Bone Marrow, rather is "rejecting it" and through another drug the body learns to accept the new bone marrow. For one year Seth will be on the medication for the transplant, but will eventually be able to be weened off.
They told us to expect to be in the hospital for 16-18 weeks, with a slight chance for a few days at home, but it didn't seem like something we should count on.
This was a TON of information and I may not have it all right, but I will update and add to what I have as I get the information. Darin and Shannon are trying to process this all right now as it is a lot to deal with, but the ball is rolling and Seth is fighting!
We are going to be posting some events for fundraising so watch for that or you can always help through paypal or any family member. The money raised so far has been such a blessing and we are grateful for any help we receive, most importantly your prayers.
Starting today we have begun the 8-12 week "get" ready process for the actual transplant. During this time they concentrate on finding a Bone Marrow match, getting insurance approval etc. This process will be involved and tedious, however they already have over 100 good matches for bone marrow (based on pre-typing) and a handful of good cord blood matches. They will narrow down the matches based a certain criteria to about 5 and then re-type and test further from there.
MEANWHILE.....
Sethman needs to get in remission again. They will continue to do Chemo injections 2x's per week in the spine and once remission is achieved, they will get his counts up then start prep. therapy for transplant. Which is basically as follows: Kill all bone marrow, through major Chemotherapy, plan on that taking 1.5- 2 weeks, then transplant. This is actually done in his room and then we wait for counts to come back. This typically takes around 20 days. for the next 6-8 weeks they watch for Graft vs. Host disease. This is where it gets tricky for me. They actually want to see this as it means the body didn't automatically assimilate the Bone Marrow, rather is "rejecting it" and through another drug the body learns to accept the new bone marrow. For one year Seth will be on the medication for the transplant, but will eventually be able to be weened off.
They told us to expect to be in the hospital for 16-18 weeks, with a slight chance for a few days at home, but it didn't seem like something we should count on.
This was a TON of information and I may not have it all right, but I will update and add to what I have as I get the information. Darin and Shannon are trying to process this all right now as it is a lot to deal with, but the ball is rolling and Seth is fighting!
We are going to be posting some events for fundraising so watch for that or you can always help through paypal or any family member. The money raised so far has been such a blessing and we are grateful for any help we receive, most importantly your prayers.
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