A Fighter's Fight.....

This is one of those times that I am CERTAIN, no matter what I write, it won't come our right, it won't feel right and it won't be right. So please read with patience as I try and get through this.

Last night Shannon and Darin were given the preliminary results to a lumbar puncture and Bone Marrow Aspirate. The news was not good and not what we have been hoping to hear. There is infection in the spine (spinal meningitis) and a lesion of some sort (most likely infection) on the base of the brain. Also, there are leukemic blasts forming. Seth has had some noticable changes in his 'attitude' and looking back we can see why now. He hasn't really interacted much with anyone and seems to have moments of complete confusion and frustration that are hard to work through. This is all reflective of what the test results show. Darin and Shannon are going to take Seth home. Most likely this will happen on Monday, perhaps Tuesday. He will continue to be given medication to try and fight the infection and will have medication available to manage the pain. He will be able to spend time at home with brother and sister, mom and dad and family. We do not know how long this precious little boy will be in our presence, however, we are determined to love every minute we have with him and make them all count. I know there are a lot of questions, and some have answers, some don't. But bottom line is Seth has fought a fighter's fight and he is going to go home to enjoy his family.

I can't begin to describe my heartache. As most of you know I am Seth's aunt. I can attest to MANY MANY acts of kindness in this families behalf and they have not gone unnoticed. As some of my siblings and I gathered around our brother last night to lend support, I was overcome with a feeling of gratitude for family and all that it means. I was also able to spend some one-on-one time with Seth and I want you all to know what an absolute angel he is. Truly in every sense of the word that little man is an angel. His eyes are bright and clear and he is mindful of the love that surrounds him. He allowed me the privilege of holding his little hand for awhile and I was able to talk to him and tell him how much he is loved. It is a moment I will treasure forever.

I will continue to update this blog...perhaps on a more regular basis now to keep you updated on the fun times Seth will be enjoying with his family. I only ask that you send your comments if you feel prompted and if any of you have picture of Seth with our without his family I would sure love a copy...you can email me at dtwebarker@msn.com.

You are an amazing group of friends and family. Your prayers are heard and felt and we are grateful for the kindness you've shared and continue to share with our family at this time. God Bless you for it!